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Showing posts from June, 2024

My journey so far

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Dear gentle readers, I hope this blog finds you all well. I’m doing great, thank you. My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months. I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore. My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:                   “ I wore a nice dress today, and my doctor smiled at me." Yes , I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.          YES ! My doctor was happy to see me, and we laughed at our silly jokes.               "I am a LIVING example that your patients are doing really well." My jour...

Pemphigus vulgaris on skin pt3

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                                              Chapter 3 * Trigger warning! The stages of life grief started to engulf me in order: denial, anger, bargaining, depression    and acceptance.    Every step consumed a huge parts of me leaving me hollow  more than ever! Stage one: Denial   August 2 2023, 1:30am  I was rushed to the hospital (Apollo Hospital) through an ambulance from Chennai international airport. I prepared a complete documented history of my case with the medical prescriptions and images of my skin as per the progress, I prepared this documentation because I wasn’t confident enough whether I will be conscious enough to explain or will be able to bare the pain to show the raw skin for examination. The next minute I found myself at the ER, doctors around me asking about when and how it started, finding my dad next to me in tear...