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Showing posts from July, 2024

Pemphigus Vulgaris- 11 things to remember

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 What this journey has taught me? Starting with simple affirmations and yearning for them to become true is where I stand today! 'That's okay! Better days are ahead of you, it's going to be fine.' They seem simpler, but the darkest times taught me that it isn't simple to hold on to them when you see your life falling apart. Picking yourself up and having the will to redesign it from scratch—everything depends on these words. So, repeat them until you make it through! YOU GOT THIS. 11 things to remember  1.   You can’t control everything and that’s absolutely okay! 2.   You will learn along the journey; every person is different thus every day is a learning , that’s okay! 3.  You will learn to love and appreciate your life. 4.   You will find ways to manage symptoms even at cost of every flare up, that’s okay! 5.   The journey is long and tiring. It’s a marathon ; with its finish line still out of sight, but t hat’s okay! 6.    Embrace your ...

Pemphigus vulgaris on skin pt4(chp4)

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                                   Chapter 4                           “They said, it supposed to be fun, turning 21 ” Stage 2: anger! “ I cried over the white sheet, when I was the art covered in shades” -rgk At home: Every time I thought how worst could it possibly get turned way worse day by day. I hated every bit of myself. I completely hated me the way I looked and smelled. I was too abusive and cruel to myself. I never understood until then “ how much of self hate can a person hold, on oneself!!? ” I pushed my mom every time she tried to get close to me, suggested that my dad stay away from my room, ‘cause I was able to see that it was  suffocating for him to stay in same room .  I used to wake up in the middle of the night screaming and crying, and continued maximum nights staring at the ceiling replaying the same pla...