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Showing posts from July, 2024

My journey so far

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Dear gentle readers, I hope this blog finds you all well. I’m doing great, thank you. My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months. I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore. My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:                   “ I wore a nice dress today, and my doctor smiled at me." Yes , I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.          YES ! My doctor was happy to see me, and we laughed at our silly jokes.               "I am a LIVING example that your patients are doing really well." My jour...
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Pemphigus vulgaris on skin pt4(chp4)

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                                   Chapter 4                           “They said, it supposed to be fun, turning 21 ” Stage 2: anger! “ I cried over the white sheet, when I was the art covered in shades” -rgk At home: Every time I thought how worst could it possibly get turned way worse day by day. I hated every bit of myself. I completely hated me the way I looked and smelled. I was too abusive and cruel to myself. I never understood until then “ how much of self hate can a person hold, on oneself!!? ” I pushed my mom every time she tried to get close to me, suggested that my dad stay away from my room, ‘cause I was able to see that it was  suffocating for him to stay in same room .  I used to wake up in the middle of the night screaming and crying, and continued maximum nights staring at the ceiling replaying the same pla...
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