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Showing posts from August, 2024

My journey so far

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Dear gentle readers, I hope this blog finds you all well. I’m doing great, thank you. My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months. I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore. My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:                   “ I wore a nice dress today, and my doctor smiled at me." Yes , I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.          YES ! My doctor was happy to see me, and we laughed at our silly jokes.               "I am a LIVING example that your patients are doing really well." My jour...

Nothing is beyond our mind pt-5

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                                     NOTHING IS BEYOND OUR MIND Room no: 2323 I was shifted to room no.2323 with the bed, as I passed the nursing station, I saw them overwhelmed and their eyes glowed in curiosity. Entered the room and I helped myself out of the bed and headed to lavatory, when I stepped out a new nurse was already appointed for me.  As I was trying to reach the bed, she saw my bare back which was eroded completely, she reached out to me and asked for my permission to click a picture of my skin. I positioned myself under a bright light for a clear view.  [ I never felt the curiosity in them as a fault, placing me in their position I would’ve been more than excited to know about the new case. I appreciated her approach and interest in knowing about it.] The same night I slept like a baby. It’s been months since I had such a good sleep. Morning around 6 am they woke ...

Poem- I am more than my disorder

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 Poem - WHERE IS HOME? I am more than my disorder       Home: I stepped into the fields of wheat under a blue sky , Ukraine    The bewitching snow covering the territory,      When dark engulfed the sun early. Looking up to the shiny skies, only to know; it was     not the night that brought darkness rather the blackouts for protection, Windowless, doorless underground turned homes of many. Didn’t wake up to birds chippers,         Rather to the siren going on and off . As I watched through the glass window of the train,    Mothers hand holding the screaming kids close to her weeping heart ,  Thick clothes to the cold skin, didn’t cover the fear in her shaking lips. Desperation in the voices of those innocent hearts “ I want to go home ” I saw them alined in their own homes, where I was a mere foreigner on that capital land . I stepped into the land of Katrlis Deda (Georgia)....