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Showing posts from August, 2024

Pemphigus Vulgaris- 11 things to remember

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 What this journey has taught me? Starting with simple affirmations and yearning for them to become true is where I stand today! 'That's okay! Better days are ahead of you, it's going to be fine.' They seem simpler, but the darkest times taught me that it isn't simple to hold on to them when you see your life falling apart. Picking yourself up and having the will to redesign it from scratch—everything depends on these words. So, repeat them until you make it through! YOU GOT THIS. 11 things to remember  1.   You can’t control everything and that’s absolutely okay! 2.   You will learn along the journey; every person is different thus every day is a learning , that’s okay! 3.  You will learn to love and appreciate your life. 4.   You will find ways to manage symptoms even at cost of every flare up, that’s okay! 5.   The journey is long and tiring. It’s a marathon ; with its finish line still out of sight, but t hat’s okay! 6.    Embrace your ...
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Nothing is beyond our mind pt-5

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                                     NOTHING IS BEYOND OUR MIND Room no: 2323 I was shifted to room no.2323 with the bed, as I passed the nursing station, I saw them overwhelmed and their eyes glowed in curiosity. Entered the room and I helped myself out of the bed and headed to lavatory, when I stepped out a new nurse was already appointed for me.  As I was trying to reach the bed, she saw my bare back which was eroded completely, she reached out to me and asked for my permission to click a picture of my skin. I positioned myself under a bright light for a clear view.  [ I never felt the curiosity in them as a fault, placing me in their position I would’ve been more than excited to know about the new case. I appreciated her approach and interest in knowing about it.] The same night I slept like a baby. It’s been months since I had such a good sleep. Morning around 6 am they woke ...
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Poem- I am more than my disorder

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 Poem - WHERE IS HOME? I am more than my disorder       Home: I stepped into the fields of wheat under a blue sky , Ukraine    The bewitching snow covering the territory,      When dark engulfed the sun early. Looking up to the shiny skies, only to know; it was     not the night that brought darkness rather the blackouts for protection, Windowless, doorless underground turned homes of many. Didn’t wake up to birds chippers,         Rather to the siren going on and off . As I watched through the glass window of the train,    Mothers hand holding the screaming kids close to her weeping heart ,  Thick clothes to the cold skin, didn’t cover the fear in her shaking lips. Desperation in the voices of those innocent hearts “ I want to go home ” I saw them alined in their own homes, where I was a mere foreigner on that capital land . I stepped into the land of Katrlis Deda (Georgia)....
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