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Showing posts with the label Chp1 PV on skin

My journey so far

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Dear gentle readers, I hope this blog finds you all well. I’m doing great, thank you. My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months. I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore. My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:                   “ I wore a nice dress today, and my doctor smiled at me." Yes , I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.          YES ! My doctor was happy to see me, and we laughed at our silly jokes.               "I am a LIVING example that your patients are doing really well." My jour...
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Pemphigus vulgaris on skin

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      AM I JUST A KID?  Everyday there was this wave of thoughts reminding me to what lengths I was taking myself in desperation. It made me question myself why is it so important for me to look perfect? Why am reaching out to these many lengths just for lips? Is it really just for the appearance or is it an unexplainable fear to accept the fact that I’m falling sick?   The grave ignorance! People often strive to present themselves as flawless and perfect, with society valuing clear, bright skin as a symbol of wealth and cleanliness, while associating darker shades with ignorance. However, the reality remains unchanged; an 11-year-old child should not feel pressured to have a flawless complexion or feel guilty for engaging in sports under the sun. Scars and pigmentation do not hinder one's ability to achieve success or enjoy memorable moments with friends, unaffected by body odor or skin imperfections. Summer breaks should be about enjoying the sun and indulging...
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