My journey so far
Dear gentle readers,
I hope this blog finds you all well. I’m doing great, thank you.
My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months.
I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore.
My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:
“I wore a nice dress today, and my doctor smiled at me."
My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months.
I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore.
My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:
“I wore a nice dress today, and my doctor smiled at me."
Yes, I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.
YES! My doctor was happy to see me, and we laughed at our silly jokes.
"I am a LIVING example that your patients are doing really well."
I started having symptoms when I was 20, and I turned 21 in a hospital bed — battling for life, feeling weak and incapable. I dropped out of university.
But I found gratitude and began to notice the blessings around me.
I saw another year — symbolic of my existence, and I picked up drawing again. I started sculpting miniatures, reading books. The hand trembles and blisters reduced, and my confidence began to return.
I found myself at my lowest, and I also found the lost me — in acceptance. It took me 22 years to love myself for me.
Today, I turned 23.
I’m happy, feeling pretty, working out every day, pursuing my studies again, and reading over 50+ books a year and reviewing them. Art and literature healed me, and I’m deeply grateful for that.
My hair has started to grow again. I’m able to wear clothes comfortably, and this very morning, I wore a new dress (after 2yrs of wearing hospital gown). I’m absolutely not trying to hide my scars, because with them or without them — it’s still me at the end of the day.
And this is me.
I’m still under treatment, but I’m doing well — and I’m grateful for it.
WE GOT THIS!
With love,
Me
Comments
-xoxo
Thrishh