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Showing posts with the label Tips

My journey so far

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Dear gentle readers, I hope this blog finds you all well. I’m doing great, thank you. My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months. I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore. My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:                   “ I wore a nice dress today, and my doctor smiled at me." Yes , I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.          YES ! My doctor was happy to see me, and we laughed at our silly jokes.               "I am a LIVING example that your patients are doing really well." My jour...
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Tips and tricks on managing Pemphigus vulgaris

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  Tips and tricks that help me going!  Biggest alteration in my daily life after Pemphigus vulgaris that affected more were the basic necessities. The items added down are ones recommended by my doctor and some products that are personally helping me till date.  How do I protect my skin from friction during open wound? :  While sitting on the chair and while sleeping, I use under pad sheets (only change is  use the plastic side of the pad ). Yes, they produce heat but they are best for frictionless and better than cloth rubbing on the wound. It is impossible to carry ourselves without FRICTION.       What clothes can be worn? :  I’ve been using hospital gowns at home, front opening as they will not affect my under arm (axila) and bigger the size bigger the comfort as they don’t disturb with the movements. For hospital visits cotton dresses preferably front opening and bigger in size than normal.             ...
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