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Showing posts from October, 2024

Pemphigus Vulgaris- 11 things to remember

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 What this journey has taught me? Starting with simple affirmations and yearning for them to become true is where I stand today! 'That's okay! Better days are ahead of you, it's going to be fine.' They seem simpler, but the darkest times taught me that it isn't simple to hold on to them when you see your life falling apart. Picking yourself up and having the will to redesign it from scratch—everything depends on these words. So, repeat them until you make it through! YOU GOT THIS. 11 things to remember  1.   You can’t control everything and that’s absolutely okay! 2.   You will learn along the journey; every person is different thus every day is a learning , that’s okay! 3.  You will learn to love and appreciate your life. 4.   You will find ways to manage symptoms even at cost of every flare up, that’s okay! 5.   The journey is long and tiring. It’s a marathon ; with its finish line still out of sight, but t hat’s okay! 6.    Embrace your ...
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Poem- THE ART OF FORGETTING

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  The art of forgetting  And sometimes I lose track of time , deliberately . Deliberately, when the dock of emotions felt unfamiliar. Tapestry to the melancholy self , I lose track of time , 'cause the echoes felt trivial , trivial, the shades of tears , or the shadows of dauntless . Yet, the silence of the sea prevailed. Now, I lose track of time. Deliberately , pause , deliberately, to admire the timelapse . Timelapse, that hit the turmoil . For once, the fall from the deck released me , released me to fly, fly away from the wintering grounds . Regret towards the past, surpassed , and breathing felt real.  - RGK  KAVINAYAA (aka) KAVITHRA Briefing the poem: Lately I’ve been thinking and it caught my attention that there is a difference between want to and happened to, and a poem has always stood or took a great deal of role in displaying the emotions metaphorically, and the very unsettled great minds have provoked the thoughts of one through such notions. And to the...
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Pemphigus vulgaris on skin pt 6

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  The last question . Entry date: 1st October 2024 It’s been a while since the last post, they spoke about my experience during the hospitalisation which I quoted as my toughest times or that’s what I thought was! Little did I know what was on its way, was way more than the times before ,“ THE REALITY! ” I was discharged during the last week of September 2023, i was more than happy to be back home. The thoughts were loud and obvious, “this is it, I did it, no more hospital or need of hospitalisation”. I believed, as I went through it, now I know everything about it. [ spoiler alert!  My knowledge about it was just pea sized ] My search to know about this disorder only increased everyday against my parents wish, they wanted me out of it, but my part of healing were the answers to these!. I went through books, wanted to know people, wanted to know their stories but to my disappointment I found one to none. I felt the longing thus it made me to build this platform, for the silen...
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