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Showing posts from February, 2025

My journey so far

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Dear gentle readers, I hope this blog finds you all well. I’m doing great, thank you. My quality of life has improved — I’m able to move and wake up every day with zero blisters. After two years, I’ve finally been off steroids for the last two months. I’ve been wearing nice clothes during my hospital reviews. I still have my bad days, but they don’t bother me anymore. My doctor, my well-wisher — specifically asked me to mention this, and I’m happily obligated to do so:                   “ I wore a nice dress today, and my doctor smiled at me." Yes , I wore a nice dress. I saw the smile reach his eyes, those fine lines creasing with warmth. The laughter filled the renovated room, adding the most beautiful touch to it.          YES ! My doctor was happy to see me, and we laughed at our silly jokes.               "I am a LIVING example that your patients are doing really well." My jour...
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TOP 10 THINGS TO KNOW ABOUT PEMPHIGUS VULGARIS

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TOP 10 THINGS TO KNOW ABOUT PEMPHIGUS VULGARIS  "ATTITUDE TOWARDS THE DISORDER MATTERS!" It is hard, frustrating, and overwhelming to come across this term. People who are reading this might be among the warriors who got diagnosed recently, or the caregivers who are supporting their loved ones in suffering. Let this page make it easier for your initial research and understanding of terminologies. Keep in mind that every day is a learning experience! As days pass by, you will develop a tolerance to identify the triggers and symptoms. Treatment, flare-ups, and the duration of medication all differ from person to person. This page is for knowledge purposes only. World Rare Disease Day -  February 28 Definition: A rare autoimmune skin condition that cause blisters and sores on the skin or mucous membranes. 1.What foods should you avoid ? Spicy foods  hard foods  alcohol  processed sugar. food high in sodium  citric fruits (oranges, grapefruit, lemons, limes,...
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